Rare Disease Radar
Current Fundraisers
Join RareDiseaseRadar in supporting the following families! Your donations, no matter how small, are really impactful for helping these causes. To date, we have helped raise over $60,000 to support families, as well as raised money through our own fundraisers to funnel into research efforts.
01
Mike Aguilar
We are rallying behind Mike Aguilar, who has been diagnosed with a devastating combination of rare conditions: AL Amyloidosis, Nephrotic Syndrome, and Multiple Myeloma.
Mike, a dedicated husband and father of four, went from being an active, healthy individual to battling life-threatening diseases within weeks.
02
Sourav Roy
RDR is supporting Sourav, who is suffering from craniopharyngioma, a disease affecting around 1 in every 500,000. His disease onset had devastated his family, with both mental and financial drainage. Sourav is in need of financial support, and we hope you guys can help us support!
03
Jack
Meet Jack, a bright and loving 6-year-old boy from Ottawa, Canada, who has been diagnosed with Hereditary Spastic Paraplegia Type 4 (SPG4), a rare and progressive neurological disorder. His parents, Richard and Anna, are on a mission to find a cure to halt the progression of this debilitating disease. Despite the challenges, Jack's family has found hope through ongoing research and is now fundraising to support vital SPG4 research at UMass, Boston Children’s Hospital, and Drexel University. Your donation can make a difference in Jack’s life and bring hope to many others affected by SPG4. Please consider supporting their GoFundMe campaign and spreading the word about this urgent cause. Thank you for your generosity!