I have been chronically ill since I was 16 years old. As a now 23-year-old young woman, I was not prepared for the many burdens that come...

Addison's disease is characterized by insufficient production of the steroid hormones cortisol and aldosterone in the outer layers of the...

Good morning. My name is Grace Shults. I am 22-years-old and I have been dealing with Lyme disease and co-infections since I was...

Lyme disease, a tick-borne illness caused by the bacterium Borrelia burgdorferi and, less commonly, Borrelia mayonii, is the most...

Felty Syndrome is a rare autoimmune disorder, primarily associated with chronic rheumatoid arthritis (RA). It is characterized by RA, an...

Chediak-Higashi Syndrome (CHS) is a rare autosomal recessive disorder characterized by the body's inability to regulate certain cellular...

Duchenne Muscular Dystrophy (DMD) is a severe genetic disorder primarily affecting boys, characterized by progressive muscle degeneration...

Ehlers-Danlos Syndrome is a group of disorders affecting the connective tissues—proteins that provide support to skin, bones, blood...

Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig’s disease, is a progressive neurodegenerative disease. It ravages the...

Hemophilia is a rare, genetic bleeding disorder in which the blood lacks sufficient clotting factors, making it difficult for bleeding to...

Multiple Sclerosis (MS) is an unpredictable disease of the central nervous system that can range from relatively benign to somewhat...

Hey guys!! Apologies for the hiatus, we’ve been working on a local mission to spread awareness for the community. Throughout the East...

Sickle cell disease (SCD) is a genetic disorder that affects the shape and function of red blood cells. It is a condition that primarily...

Creutzfeldt-Jakob disease (CJD) is a rare and devastating neurodegenerative disorder that belongs to a group of disorders known as...

Living with a rare disease can be a challenging experience, but it's important to remember that you're not alone. In recent years, a...

Cystic fibrosis (CF) is a genetic disorder that affects the respiratory and digestive systems, causing a buildup of thick, sticky mucus...

Living with a rare disease can be a unique and rewarding experience. While it may come with challenges and obstacles, there are many ways...